Spinal Cord Injury - Quality of Life Self-care [Spinal Cord Injury – Functional Index]

Last Updated

April 26, 2016

Purpose

The SCI-QOL Self-care instrument assesses ability to conduct self-care activities in individuals with spinal cord injury.

Link to Instrument

Instrument Details

Acronym SCI-QOL Self-care [SCI-FI]

Area of Assessment

Activities of Daily Living
General Health
Quality of Life

Assessment Type

Patient Reported Outcomes

Administration Mode

Computer

Cost

Free

Cost Description

Paper copies of short forms are available. PDFs can be requested through emails to sci-qol@udel.edu and tbi-qol@udel.edu

Electronic versions can be found in the NIH Toolbox or the PROMIS app. Either app is $500/yr, and covers up to 10 iPads on a single license. The SCI-QOL and TBI-QOL CATs can be administered directly through these apps. It is important to note that using the app requires you to be physically with the participant or read the questions aloud by interview over the phone - there is no way to send a link to have someone complete the measures at home.

Free electronic versions are available. If your institution has REDCap, the CATs and short forms can be accessed through the REDCap instrument library by searching for the specific measure you want and adding them to your REDCap project. For non-REDCap alternatives, the SCI-QOL and TBI-QOL short forms can be imported into an alternative electronic administration platform such as Qualtrics, SurveyMonkey, Google Forms, etc. Email sci-qol@udel.edu or tbi-qol@udel.edu to request PDF versions.

Diagnosis/Conditions

Spinal Cord Injury

Spinal Injuries

The SCI-QOL Self-care measure is an item response theory (IRT)-calibrated item bank with 71 items that is available for administration as a computer adaptive test (CAT; range 4-12 items) or 11 item short form (SF).

Number of Items

Short: 11

CAT: 4-12

The short form requires the form and a pencil.

Less than 5 minutes

Required Training

Reading an Article/Manual

Adults

18 - 64

years

Elderly Adults

65 +

years

Instrument Reviewers

Review completed by Kelsey Stipp, M.S. and Kristian Nitsch, M.S.

ICF Domain

Body Function

Measurement Domain

General Health

Considerations

Do you see an error or have a suggestion for this instrument summary? Please e-mail us!

Standard Error of Measurement (SEM)

Depends on mode of administration and injury type:

Full Item Bank for Tetraplegia: SEM= 1.61
Full Item Bank for Paraplegia: SEM= 1.14

Minimal Detectable Change (MDC)

Calculated from SEM:

Full Item Bank for Tetraplegia: MDC= 4.47
Full Item Bank for Paraplegia: MDC= 3.17

Cut-Off Scores

≤32: No self-care activities
33-43: Eating and some basic dressing and bathing activities
44-51: Most basic dressing and bathing activities
52-60: Most self-care activities
≥61: All self-care activities

Sinha et al. (2015)

Normative Data

Traumatic SCI: The normative data are calibrated on adults with traumatic spinal cord injury. The mean score (T = 50) indicates a score that is normal for an adult with a traumatic SCI. (Jette et al., 2015; n = 460, mean age = 43.1 years (14.8); time post injury = 6.8 years (8.9); 46.5% paraplegia, 53.5% tetraplegia)

Test/Retest Reliability

Traumatic SCI: (Jette et al., 2015; n = 460)

Excellent: (ICC = 0.98 for tetraplegia; ICC = 0.97 for paraplegia)

Criterion Validity (Predictive/Concurrent)

Traumatic SCI: (Sinha et al., 2015; n = 269; mean age = 43.8 years (15.5); time post injury = 6.8 (8.7); 46.5% paraplegia; 52.4% tetraplegia)

Adequate concurrent validity with:

Functional Index Measure: ρ = 0.665

Floor/Ceiling Effects

Traumatic SCI: (Jette et al., 2015)

Tetraplegia

Floor Effect: Adequate (1.6%)
Ceiling Effect: Excellent (1.6%)

Paraplegia

Floor Effect: Excellent (0%)
Ceiling Effect: Excellent (15%)

Bibliography

Jette, A. M., Slavin, M. D., Ni, P., Kisala, P. A., Tulsky, D. S., Heinemann, A. W., Charlifue, S., Tate, D. G., Fyffe, D., Morse, L., Marino, M., Smith, I., & Williams, S. (2015) Development and initial evaluation of the SCI-FI/AT. Journal of Spinal Cord Medicine, 38(3), 409-418 Find it on PubMed

Sinha, R., Slavin, M. D., Kisala, P. A., Ni, P., Tulsky, D. S., & Jette, A. M. (2015) Functional ability level development and validation: Providing clinical meaning for spinal cord injury functional index scores. Archives of Physical Medicine and Rehabilitation, 96, 1448-57 Find it on PubMed