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Listing: Amyotrophic Lateral Sclerosis (ALS) Resources

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Reviewed Date

Feb 1, 2023

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Amyotrophic Lateral Sclerosis (ALS) is a nervous system disease that weakens muscles and impacts physical function. Pronounced (a-my-o-TROE-fik LAT-ur-ul skluh-ROE-sis), it is also known as Lou Gehrig's disease, this disease causes the nerve cells to break down, which reduces functionality in the muscles they supply. The cause is unknown. The main symptom is muscle weakness. ALS often begins with muscle twitching and weakness in a limb, or slurred speech. Eventually, ALS affects control of the muscles needed to move, speak, eat and breatheMedication and therapy can slow ALS and reduce discomfort, but there's no cure.

Amyotrophic Lateral Sclerosis Association  - ALS Association
https://www.als.org/understanding-als

Les Turner ALS Foundation
https://lesturnerals.org/

MedlinePlus 
https://medlineplus.gov/amyotrophiclateralsclerosis.html

Muscular Dystrophy Association 
https://www.mda.org/disease/amyotrophic-lateral-sclerosis

National Institutes of Health (NIH)/National Institute of Neurological Disorders and Stroke (NINDS)
https://www.ninds.nih.gov/amyotrophic-lateral-sclerosis-als-fact-sheet

Resources:


ALS Resource List
https://www.youralsguide.com/resource-list.html

Everything ALS
https://www.everythingals.org/

KidsHealth - Lou Gehrig's Disease (ALS)
https://kidshealth.org/en/kids/als.html

Spanish ALS Resources:

The ALS Association has a Living With ALS Resource Guides that are available in Spanish.
https://www.als.org/navigating-als/resources/guias-de-recursos-vivir-con-ela

Kidshealth.org has a has Spanish language ALS resource sheet.
https://kidshealth.org/es/kids/als.html 

 

This content is for informational purposes only and may not be comprehensive. Information contained does not imply an endorsement from Shirley Ryan AbilityLab, and does not replace the advice of a qualified healthcare professional.  See here  for further details.© Shirley Ryan AbilityLab (formerly Rehabilitation Institute of Chicago)
Henry B. Betts LIFE Center – (312) 238-5433

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