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Clinical Trial

Research Survey: Answer questions about your experience receiving Home and Community-Based Services (HCBS)

Contact

Niveda Tennety hcbs-rrtc@sralab.org
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Objective

The purpose of this study is to test a set of surveys designed to determine if Home and Community-Based Services (HCBS) are person-centered. HCBS are services that help people with disabilities or older adults to live in the community and are paid for by Medicaid. Person-centered HCBS are based on what is important to the person receiving the services and are designed to help the recipient live the life they want to live. In order to determine if HCBS are person-centered, a set of surveys has been developed to measure the person-centeredness (or not) of HCBS. You will be helping to see if the surveys measure what they are intended to measure.

You may be eligible to participate if you:

  • Are a current or former recipient of HCBS
  • Live in the United States
  • Are 18 years old or older
  • Speak and understand English
  • Have access to the internet or a phone

You can complete the eligibility survey here: https://redcap.link/hcbsquality 

If you are eligible to participate, you will:

  • Participate in a one hour Phone or Zoom consent meeting
  • Complete two, one-hour long surveys about your daily life and your experience with HCBS over the course of two to nine months via Zoom, phone or online
  • You have the option to complete additional surveys

Please note: Accommodations are available.

IRB #: STU00214517

Compensation

A gift card will be provided for each completed interview or online survey (not for the eligibility survey) 

Age Range

18+

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